dnacpr mental capacity act

It follows that no such duty [exists] in the case of Anthony Bland, whose condition is in reality no more than a living death, and for whom such treatment or care would, in medical terms, be futile.51. The process results in an agreed care plan recorded on a ReSPECT form, of which recommendations on the administration of CPR are one element. This requires providers to ensure standards of documentation and record keeping and sharing of information around the system.17. It is crucial not to lose sight of this imperative and not to turn exclusively to appropriate others where someone lacks capacity, instead of attempting to involve them in the discussions. However, from a legal perspective, the only situation in which an advance decision not to administer CPR is binding is where someone refuses to consent to CPR in an advance directive.36 To administer CPR in such a case would amount to a battery.37 Here, it becomes important to understand the differences between DNACPR decisions and advance CPR refusals. As this would include an assessment of the overall quality of life to which the person would be restored, the Guidance acknowledges that the decision thus goes beyond merely clinical considerations and should therefore be made jointly with the person, at least if she has capacity.63, The MCA Code of Practice distinguishes further between cases where CPR is overly burdensome and where there is a lack of prospect of recovery.64 Case law often discusses these concepts together. (2015) have documented, concerns guidance for reviewing DNACPR recommendations. However, it was also shown that it will only be a very small number of cases in which a lack of success can be predicted with certainty, rather than based on a calculation of probabilities. British Medical Association, Resuscitation Council (UK) and Royal College of Nursing (n 1) 15. To make the most of this opportunity, attention should be paid to the need for tailored guidance and training for social work and capacity professionals, who have important roles to play in DNACPR practice. In particular, it was reported that DNACPR forms were introduced into residents records in a blanket fashion, either for all residents of particular care homes, or for all residents with specific characteristics, such as being of a certain age or suffering from cognitive impairment (Lintern, 2020; Thomas, 2020). We also sought geographic representation across regions of England and Wales. The aim of the present research was to investigate DNACPR practices within care homes during the pandemic; to better understand the role that capacity professionals might play in ensuring the lawful use of DNACPR recommendations in this setting and to consider how these professionals can best be supported in that role. In the 1960s, it became possible to apply cardiopulmonary resuscitation (CPR) when a person stops breathing or her heart stops beating. A lower level of consultation is required in cases where there is no reasonable prospect of success; more substantial consultation is expected where further elements implicating quality of life are a relevant consideration. The CQC found that 28 per cent of DNACPR recommendations were applied whilst the patient was living in a care home or in supported living (2021, Appendix B, fig. A participant information sheet was provided to all participants prior to survey and focus group participation; informed consent was obtained via the Qualtrics platform (for the survey) or email (for the focus groups) prior to data collection. Aintree University Hospitals NHS Foundation Trust v James [2013] EWCA Civ 65 [38] (Ward LJ). Certainly, one important element of a response must be to ensure that new training includes clear guidance about who should be involved in the DNACPR decision-making process, and the circumstances under which it must involve more than a narrowly clinical determination. The red form makes no reference to benefits and quality of life, but it provides as one of three possible grounds for a DNACPR decision that the patients condition indicates that CPR would have an uncertain outcome and that, after discussion, it was agreed that CPR would not be appropriate. Resuscitation Council UK, ReSPECT (n 23). As discussed, social workers have a key role to play in ensuring that the human rights of care home residents are upheld, yet, many of the professionals in our study expressed the view that the DNACPR decision-making process was out of their hands, controlled largely by clinical professionals in hospitals or GP practices. When asked to specify which medical decisions had been influenced by DNACPR recommendations, twenty-two respondents reported that a decision had been made not to transfer any residents with a DNACPR recommendation to hospital. British Medical Association, Resuscitation Council (UK) and Royal College of Nursing (n 1) 1213. The courts did not set different standards for consultation depending on the reasons for which a DNACPR decision is made. It should therefore be clarified in the Guidance on CPR that a DNACPR decision can only be regarded as purely clinical in exceptional cases where success of CPR can be excluded with certainty. It furthers the University's objective of excellence in research, scholarship, and education by publishing worldwide, This PDF is available to Subscribers Only. Where a person is dying from an irreversible condition, CPR may be futile, or the benefits minimal and administering it may preclude a peaceful and dignified death (General Medical Council [GMC], undated, para 128). To call them orders or instructions is misleading and risks fostering misunderstanding of their legal status. Only decisions to provide treatment require a defence against a potential battery actioneither in the form of consent, where the individual concerned has capacity, 27 or in the form of the best interests tests, where this is not the case (section 5 of the Mental Capacity Act (MCA)). Using a sequential explanatory mixed-method design, we conducted an online survey and two follow-on focus groups in the Spring of 2021 (i.e. Winspear v City Hospitals Sunderland (n 4) [46] (Blake J). When it is considered to be useful that a DNACPR decision is put in place side by side with an advance refusal, for example to record clinical reasons for such a recommendation or discussions between health professionals and patients that result in a joint view, the DNACPR form should record the existence of the advance refusal and its scope of application and that the two distinct records should be kept together. Treatment decisions always need to be personalised and take into account all the circumstances of the individual case. The second prong of futility as defined in Aintree, the lack of any benefit to the person, leaves room for including the person concerned in the decision-making process, given Lady Hales emphasis on benefits including other than medical benefits.61 This broader definition of futility therefore does not give rise to a situation where only clinical considerations guide the treatment decision. It also follows that (provided of course that they have acted reasonably and without negligence) the clinical team will not be in breach of any duty towards the patient if they withhold or withdraw it.28, While neither the consent requirement nor the best interests test of the MCA, therefore, apply to DNACPR decisions, they do apply to the decision to administer CPR. Four respondents reported that they had witnessed the denial or withdrawal of medication on the basis that a resident had a DNACPR recommendation in place. Conflict of interest statement. The person concerned has a right to be consulted and the clinical decision needs to be made in the light of the likely outcome, the patients ascertainable wishes, and his or her human rights.43 Some academics go as far as to suggest that the wishes of the person who wants to be resuscitated irrespective of the prognosis should be respected,44 which might seem to require a health professional to administer CPR against their clinical judgement if the patient so wishes. Regina (Tracey) v Cambridge University Hospitals (n 3) [65] (Lord Dyson MR). A treatment may bring some benefit to the patient even though it has no effect upon the underlying disease or disability.56. (Social Worker/BIA). Following two landmark legal cases, Tracey in 2014 and Winspear in 2015, there is a clear duty in English and Welsh law to carry out a consultation prior to recording a DNACPR recommendation. The question in Bland was whether continuing life-sustaining artificial nutrition and hydration were indicated in the best interests of Anthony Bland, who was in a persistent vegetative state (PVS). We refer to DNACPR decisions, but it is important to be clear about what decision is being referred to. They should also include a brief explanation as to why there is no chance of success. One participant stated: weve spoken at length in our team about at least a couple of care homes that I can think of in our area, where at the beginning of the pandemic GPs have gone into the homes and signed off on DNACPR orders for all of the residents. The ReSPECT form, produced by the National Resuscitation Council, serves a broader purpose, covering an array of issues pertaining to ceilings of treatment and end-of-life planning in addition to recommendations about CPR. Montgomery v Lanarkshire Health Board [2015] UKSC 11 [88] (Lord Kerr and Lord Reed). That in the end, clinical opinion seems to prevail in case of disagreement contradicts the Guidance on CPRs position that the persons decision should be followed even if there is only a small chance of success. One focus group participant described the process in these stark terms: there was no consultation with family, no consultations with the person, and, in some instances, not even a consultation with the care home staff. It furthers the University's objective of excellence in research, scholarship, and education by publishing worldwide, This PDF is available to Subscribers Only. Focus group participants affirmed that DNACPR forms have influenced medical decisions beyond CPR. the witness signs it, or acknowledges his signature, in P's presence. C Foster and T Hope, What Sort of DNAR Order Is That (2012) 105 J R Soc Med 279. See: (last accessed on 26 March 2022). Thus, futility was not assessed with regard to whether the treatment at issue, in this case artificial nutrition and hydration, had a chance of success in terms of achieving its immediate and physiological purpose, i.e. We report on a survey and focus groups that probed the experiences of this professional group during the pandemic. In the foregoing, we undertook an examination of the law, guidance, and administrative paperwork associated with the practice of DNACPR decisions. 10). In order to determine whether the benefits of CPR would be likely to outweigh the harms and burdens, or whether the level of recovery expected would be acceptable to the patient, there should be sensitive exploration of the patients wishes, feelings, beliefs and values.90. One focus group participant described a blanket decision by the GP across the 10 people in the care home, all with learning disabilities and physical disabilities (Apprentice Social Worker). British Medical Association, Resuscitation Council (UK) and Royal College of Nursing, DecisionsRelating toCardiopulmonaryResuscitation (3rd edn, BMA, 2016) 7. A DNACPR recommendation may be made either because there is no (reasonable) prospect of successfully reviving the person or on the basis of an assessment that, although there may be some chance of success, the burdens associated with the procedure outweigh the potential benefits (BMA, RCUK and RCN, 2016). Early in the COVID-19 pandemic, DNACPR recommendations became the focus of intense public scrutiny. GP mythbuster 105: Do not attempt cardiopulmonary resuscitation (DNACPR) We recommend a number of changes to the forms aimed at rendering DNACPR practice compliant with the law and more protective of the persons human rights. A specimen copy of the ReSPECT for can be found at (last accessed on 26 March 2022). The senior clinician responsible has made the decision in consultation with the person and in line with the Mental Capacity Act 2005. The decision, DNR, or DNAR, or DNACPR always has been, and still is, solely a clinical decision for the doctor, solely his responsibility, no-one else. DNACPR forms, which record DNACPR recommendations in advance of an anticipated arrest, are intended to avoid recourse to CPR where CPR would not be in the interests of the patient. Or is the determining issue whether CPR has a chance of achieving its clinical purpose of resuscitating the person? whether the yardstick is the lack of effectiveness of the treatment or the lack of benefits for the patient. British Medical Association, Resuscitation Council (UK) and Royal College of Nursing (n 1). DNACPR order on a 28-year-old man with cerebral palsy without the knowledge of his family was a violation of article 8 of the Human Rights Act.51 Section 4 (7) of the Mental Capacity Act 2005 provides that: '[The decision-maker] must take into account, if it is practicable and appropriate to consult them, the views of anyone engaged This means that the views of anyone named by the person to be consulted, engaged in caring for the person or interested in their welfare, donee of a lasting power of attorney or court appointed deputies must be taken into account, where consulting them is practicable and appropriate.84 Where consultation that would be appropriate and practicable is omitted, the decision to file the DNACPR notice on the patients medical records would be procedurally flawed85 and therefore not in accordance with the law, as required by Article 8(2) in order to justify the resulting interference with Article 8(1) of the ECHR. Media reports alleged that DNACPR recommendations were being put in place in a manner that violated the existing guidance, which prescribes individualised assessment and consultation. As we have seen, current guidance establishes different standards for consultation, depending on the basis for the DNACPR decision. Emily Fitton and others, Managing DNACPR Recommendations in Residential Care: Towards Improved Training for Social Care and Capacity Professionals, The British Journal of Social Work, 2023;, bcad078, https://doi.org/10.1093/bjsw/bcad078. Whilst some DNACPR forms include a field to indicate a review date, the absence of national guidance results in the significant regional variation in review practices (Freeman et al., 2015). The use of Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) recommendations has come under scrutiny during the COVID-19 pandemic, and the Care Quality Commission (CQC) has issued a call for new standards, guidance and training. Even where guidance is clear, however, terminology has the potential to foster misunderstanding. Also, CPR cannot be withheld purely because the person does not have a chance of recovering fully from the underlying illness that might have caused the cardiac arrest. The participant reported that, ordinarily, general practitioners (GPs) would review DNACPR recommendations made in the hospital upon return to the care home, but this procedure had not always been followed during the pandemicand Care homes werent actually even informing the GP that a DNACPR order had been put on the individual: I had a gentleman who was very fit and healthy, and contracted COVID and ended up in hospital. ACP can take a variety of forms, but is typically a collaborative process in which professionals and family members work with the care recipient to plan for future care decisions. British Medical Association, Resuscitation Council (UK) and Royal College of Nursing (n 1) 12. Regina (Tracey) v Cambridge University Hospitals NHS Foundation Trust and another (Equality and Human Rights Commission andAnotherIntervening) [2014] EWCA Civ 822. It will also show that not only the DNACPR forms that the ReSPECT form is aiming to replace, but also the ReSPECT form itself have some shortcomings in reflecting the legal requirements on DNACPR decisions. 4) and social workers who work with care homes, such as BIAs, are thus well-placed to identify and draw attention to unlawful practice with respect to DNACPR. The CQC reported a significant rise in the number of DNACPR recommendations in place for persons in care, evidence of blanket adoption of DNACPR recommendations in some care settings and evidence of DNACPR recommendations being adopted without consultation. Findings SLT involvement in mental capacity assessment, best interests decisions and advance care planning during the pandemic. The Guidance on CPR does not explicitly refer to the concept of futility and rather focuses on whether CPR has no realistic prospect of success. . Particularly problematic is the common truncation of the DNACPR acronym to DNARDo Not Attempt Resuscitation. Sabine Michalowski , Wayne Martin, DNACPR Decisions: Aligning Law, Guidance, and Practice, Medical Law Review, Volume 30, Issue 3, Summer 2022, Pages 434456, https://doi.org/10.1093/medlaw/fwac007. As decisions about CPR, by their nature, need to be made in acute crisis situations and under enormous time pressure, the purpose of DNACPR decisions is to record in advance whether or not CPR should be initiated, and to avoid resort to CPR in circumstances where it would be inappropriate to administer it. At the end of the survey, participants were asked to provide an email address if they were interested in participating in a focus group aimed at further exploring key topics identified in the survey. New standards, training and guidance should include content that pertains specifically to the review process for DNACPR recommendations, whilst also providing instructions concerning the grounds upon which a review can be requested. Indeed, the very fact that the concept was interpreted differently by all three courts involved in the Aintree decision highlights its conceptual uncertainties.60. Clinical judgement is undoubtedly relevant to recommendations made on such grounds, but it is not determinative. The appropriateness of such a decision should therefore be carefully considered and recorded. The lilac form makes this clear when it clarifies that all other appropriate treatment and care will be provided. Nevertheless, social workers sometimes have a significant role to play in the decision-making process, supporting the patient and those close to them, and advocating for their views and wishes. I do not consider that, in circumstances such as these, a doctor is required to initiate or to continue life-prolonging treatment or care in the best interests of his patient. This professional group includes Independent Mental Capacity Advocates (IMCAs), Best Interests Assessors (BIAs) and care home managers. Social workers may be involved in supporting the patient in making such decisions (Wang et al., 2018). We suggest that the forms are essential. The Guidance on CPR at some point calls advance DNACPR decisions instructions.35 Both termsorder and instructioncould suggest that DNACPR forms record binding decisions. A revised, standardised DNACPR form should explicitly warn against reliance on a DNACPR recommendation in making other care decisions. DNACPR means if your heart or breathing stops your healthcare team will not try to restart it. This article will also analyse commonly used DNACPR forms, as well as the Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) form, which aims to incorporate DNACPR decisions as part of more holistic end-of-life care planning.

Tommy Hilfiger Pezley, Yale University Departments, Beadalon Knotting Pliers, Macdougall Hunting Tartan, Articles D